International ME/CFS awarenessday

“Light up the Night 4 ME” - Unsupported since 1969

AAT sets an example and, together with other institutions, makes the serious neuroimmunological disease ME/CFS visible.

May 12, 2024 is the annual International ME/CFS Awareness Day, when buildings, landmarks and private homes around the world are illuminated in blue from dusk. ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) is one of the last major diseases that has hardly been researched. To date, there are no approved drugs or therapies. This day is intended to draw attention to this serious, incurable disease, to the situation of those affected and their relatives and also to raise awareness of the disease in society. 

Although ME/CFS has been classified by the WHO as a neurological disease under ICD 10 G93.3 since 1969, the care situation is precarious or non-existent. There is a lack of education, medical care, social security and research funding. ME/CFS is still not part of the curriculum for prospective doctors, resulting in many misdiagnoses with dramatic consequences due to a lack of knowledge. Patients often confuse the symptoms with a mental illness, which should be treated with activation therapies.

However, ME/CFS is a disease in its own right and should not be confused with the symptom of “fatigue”, which occurs in many chronic inflammatory diseases and can be treated with activation therapies. 

Further information can be found here: 

https://www.mecfs.de/was-ist-me-cfs/